How to Find a Macular Degeneration Support Group


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Macular degeneration support groups may be found in your local area or you may find that the best place for AMD support is on-line.

macular degeneration support group

Joining a Macular Degeneration or Low Vision Support Group is a great way to find out ways others are adjusting to their vision loss and to learn from their recommendations of visual aids or low vision services that have been helpful to them.  

At www.MDSupport.com you will find a global network of groups hosted by retirement centers, senior organizations, clinics and libraries. That's how I found one that is just 3 miles away from my home.  It meets once a month and is led by a registered nurse who has retinitis pigmentosa.  Each month attendees have an opportunity to share their tips on coping with low vision and have an opportunity to learn more about services that are available to them as well as low vision aids.  Go to www.MDSupport.com to find out if there is a low vision support group where you live:

Geographical Listing of AMD Support Groups

AMD Support

Through monthly telecasts, this site offers very informative and practical information to help people live successfully with macular degeneration. The programs are archived for free viewing in the Audio/Visual Library. Here are the topics that will be covered for 2015:

JANUARY
“Living With a Low Vision Person”

(This special ILVSG audio/visual version is available only to affiliates by selecting this link.)

Nancy Goodman Torpey & Peter Torpey (hosts of the weekly Internet podcast, Eyes On Success) interview family members of people with low vision. The session also includes helpful information for caregivers provided by Dan Roberts.

FEBRUARY
“Using a Cane: Is it Right for Me?”

(This special ILVSG audio/visual version is available only to affiliates by selecting this link.)

Presented by Julie Deden, (Executive Director, Colorado Center for the Blind) at VISIONS 2014, sponsored by the Foundation Fighting Blindness.

MARCH
“Overcoming Challenges of Vision Loss”

(This special ILVSG audio/visual version is available only to affiliates by selecting this link.)

Nancy Goodman Torpey & Peter Torpey (hosts of the weekly Internet podcast, Eyes On Success) often say that nothing is impossible just because you can’t see. In this session, we hear heartfelt thoughts from several visually impaired people on the subject and how they have overcome others telling them something was impossible.

APRIL
“All About Glasses”

Dan Roberts (ILVSG Director) explains prescription numbers, types of eyeglasses, how visual acuity is measured, and how to choose the right sunglasses. Four different eye tests are available for self-monitoring between exams.

Download Eye Tests

MAY
“Don’t Let Low Vision Bring you Down: Coping with Depression, Anxiety and Anger”

(This special ILVSG audio/visual version is available only to affiliates by selecting this link.)

Presented by Beth Gustin (Center For People With Disabilities) at VISIONS 2014, sponsored by the Foundation Fighting Blindness.

JUNE
“Summary of Research & Developments 2015″

Dan Roberts’ annual wrap-up of the past 12 months of news from the field of low vision.

JULY
“Sightseeing Without Sight”

(This special ILVSG audio/visual version is available only to affiliates by selecting this link.)

Dan Roberts introduces new research which has shown that our brains actually do form mental images from what we hear. Sightseeing can, therefore, be possible if we just “open our ears” to the sounds around us.

To make sightseeing easier, Peter Torpey and Nancy Goodman Torpey from Eyes on Success discuss making the best of nonvisual senses while traveling, including examples from their recent trip. It includes audio clips, pointers about information available at most Visitor Centers, and suggestions of the kinds of accommodations one might expect.

At the end of the presentation, a fun demonstration of “audio imaging” involves the listener.

SEPTEMBER
“Training and Raising Guide Dogs”

(This special ILVSG audio/visual version is available only to affiliates by selecting this link.)

Peter Torpey and Nancy Goodman Torpey from Eyes on Success speak with Pam Boy (Region Coordinator for Guiding Eyes For The Blind) about the making of a guide dog, from breeding to final graduation.

OCTOBER
“Update on Assistive Technology for Low Vision”

(This special ILVSG audio/visual version is available only to affiliates by selecting this link.)

A telephone discussion with Ike Presley of the American Foundation of the Blind’s National Literacy Center. A presentation selected from the 2014 BrightFocus Chat series.

NOVEMBER
Nutrition expert Ellen Troyer (CEO, Biosyntrx, Inc.) returns for her 11th annual update on the latest about diet and eye health.

You can also be a part of an on-line macular degeneration support group by becoming a member of the MD Community's Email Discussion Group or by becoming a part of MD Forum where you can post or read messages from other people on any topic relating to macular degeneration.

Click on the link below:

Macular Degeneration Support Groups 

Go from Macular Degeneration Support to Macular Degeneration Help 

Go from Macular Degeneration Support Group to WebRN Macular Degeneration Home 

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The Latest Macular Degeneration Clinical Trials?

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√ Prevention of Macular Degeneration?

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√ Food Suggestions for a Macular Degeneration Diet?

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If you said "yes" to any of the above, sign up for the monthly Macular Degeneration News.