New Journey with Wet AMD - Diagnosed When Having Cataract Surgery
Two years ago, I was diagnosed with Wet AMD. I was having cataracts removed at the time.
I went to see a retina specialist and he said I had bleeding behind my right eye, but it was not within my eye sight so he would check me every 6 months.
I began to see changes in the past few months. Actually thought that there was an ant on my glasses, when it was a floater.
I have trouble reading the newspaper and am having to have more light at work. After having my vision checked for the possible necessity to change glasses and making 3 calls to the retina doctor's office, I was "allowed" to come in to see the doctor.
I received an injection of Avastin and will receive Lucentis for the other eye next week. I really don't know what to expect. I know that everyone is different, but I would like to know what is ahead. I am 71.
My sight is worse since the shot last week, but I understand it takes awhile for the eye to adjust to the medicine. I could actually see the fluid that was being injected. Weird.
I Have Macular Degeneration Too Now - I'm Devastated; Discovered during cataract surgery
(Kitchener, On, Canada)
I've recently been told that I have macular degeneration starting in my right eye. I'm 48 years old.
I have had 6 detached retina surgeries on both eyes when I was little, and just recently had cataracts develop in both eyes.
I had the cataract removed in my right eye, that's when it was discovered I had macular degeneration in that eye.
In August, I'm getting my left eye done to remove the cataract, but that's not even my fear.
I've been through alot with my eyes, detached retinas, then laser surgery, now cataracts, but nothing,nothing terrifies me more than macular degeneration. I am trying to find out how much time I have, how quickly it will progress.
My Uncle has the wet kind in both eyes, he is legally blind. He tries to be upbeat, he gets needles every month, but he is still legally blind. He wanted to die in the beginning, but he has adapted.
I'm trying to learn what I can from him now.
New Wet AMD atfer Cataract Surgery and Scared 58 year old female
I discovered I had dry AMD about 8 years ago and recently had cataract surgery in October.
By the end of December I was diagnosed with wet AMD in my right eye after a floater appeared in it. I felt devastated, fearful that I will get it in both eyes.
I began Lucentis injections immediately and just had my third one. In four weeks I will have an OCT to determine if it has dried and if injections can be spaced out more than every four weeks.
My vision is improved but not dramatically. I will be happy to maintain what I have. The fear and anxiety has been difficult to cope with but I am doing better.
I was imagining I would go blind and how much my life would change. I began to feel that the fear was worse than the idea of my vision going and have settled more into acceptance of my disease.
It really helped me to read others peoples' stories and know that I am not alone.
I'm wondering if it is common to develop wet AMD after cataract surgery. Thanks everyone for sharing your experiences.
From Cataract Surgery to a Diagnosis of Macular Degeneration
(Bay Minette, AL)
I have a rather complicated medical history. I have inherited Polycystic Kidney Disease, and in 1985 I developed Sjogren's Syndrome, an autoimmune disease.
The combination of these two diseases resulted in a Liver/Kidney Transplant in 2002. I have been fortunate for 11 years - no complications related to the transplant. I have worn glasses, mostly for reading and driving for years and knew that I had developing cataracts.
I had the right eye cataract removed in Nov. 2012, and the left the following month.
Immediately following these operations I had what they called a "glare complication" and eventually had both eyes lasered, with no real results.
In the process of trying to determine the cause of this glare, which radiates outward from a TV screen or car headlights, I saw a different surgeon from the one who did the cataract surgeries and the laser treatments.
He had an optic nerve test performed, then told me, very kindly, that I have macular degeneration.
I was later informed that this was not discovered during the optic nerve test, but rather just by the visual examination of my eyes while they were dilated. As an RN, I immediately knew the import of macular degeneration and left the office crying, almost uncontrollably.
This physician had me scheduled to see a retinal specialist the next week (last week) and after more bright light exams and angiogram studies I learned that I have the dry type, but that it can turn into the wet kind. Bad news and worse news.
The dry kind is slow to progress, and I was instructed to get the special vitamin supplement. The wet kind is faster, but there are injections that may stop the bleeds.
I am retired, and in addition to the transplant and the immunosuppressive medications that are required, I am diabetic, thanks to drug therapy, and take insulin. And I also have severe gout, dating back to the pre-transplant days.
I am not obese. I have never smoked, though I did have a husband who smoked continuously but we have not been married in over 20 years.
I live alone, and my two adult sons help whenever possible. But the prospect of continuing to live alone as my vision goes, of not being able to drive, of not being to read or paint, of not being able to care for my multitude of animals is frustrating.
Despite my many health problems and operations, divorce, and other occurrences that have had a huge impact on my life I have never felt "depressed" but this is getting me there. I don't want to feel helpless, it is not in my nature. I am searching the internet almost daily for any little bit of hope. And I have to believe that there is help out there, somewhere.
Thanks for taking the time to share your story and your feelings. It may not be of any comfort to you, but your feelings of sadness and loss after your diagnosis of AMD is not uncommon.
I wrote an article about Emotions and AMD here:
Emotions and Vision Loss
You have dealt with and learned to live with many other difficult health problems and you will with this one too. You are doing the right thing by learning about AMD and what to expect. There are so many visual aids that can keep you independent if or when your vision starts to deteriorate. You can read about them here:
Visual Aids for Macular Degeneration
Just one more thing - with all of your autoimmune disorders there is a lot of chronic inflammation in your body, I don't know about your diet restrictions with the transplant - but read about how an anti-inflammatory diet can reduce chronic inflammation here:
√ Prevention of Macular Degeneration?
√ Tips for Daily Living?
√ Food Suggestions for a Macular Degeneration Diet?
√ Ideas on Visual Aids to Maximize your Sight?
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