Wet Macular Degeneration at 51 Years Old

by Teresa
( Ohio)

I never missed my annual eye exam as I always kept a supply of contacts on hand.

How could my eye doctor have simply "dismissed" my complaints that something was wrong? During a casual conversation with my brother, I mentioned this and he strongly suggested I go to his eye doctor. So glad I listened to him and went to his ophthalmologist.

In April 2009 I was referred immediately to a retina specialist and was diagnosed with wet macular degeneration in both eyes.

What a shocker-I didn't even know what it meant. My left eye has the "twisting" with gray distortion in the center. My right eye has no distortion, thank goodness.

I am female born in 1958, have never smoked, not obese, and it's not in my family history. I'm in good health, take no medications and I exercise regularly.

Treatment started with Avastin injections,in both my eyes for maybe 5 months. It seemed to help shrink the hole but the results were inconsistent.

The doctor wasn't pleased with my results with Avastin. It seemed to work at the beginning but we seemed to be getting nowhere.

With a switch to Lucentis my eyes responded better. I know studies showed it to be the same as Avastin but not in my case. Lucentis helped shrink the sizable hole but it wouldn't totally seal the leak.

The injections continued in the left eye until September of 2010. The right eye was doing OK. No shots since June 2010.

The shots are indeed risky and results were inconsistent so the doctor suggested photodynamic therapy (PDT).

I agreed we needed a different approach. October of 2010 I received photo dynamic therapy (PDT) in both eyes. About a month after the PDT treatment I had a posteriour vitreous detachment (PVD) but thankfully not a detached retina.

It has left me with some rather large floaters. In late December 2010 I received a shot in the left (bad) eye.

February 2011 I saw the retina doc for my regular follow up and it was anything but typical. He said the leaks were closed! I am happy to report that 2011 has been a NO SHOT YEAR! I continue to see my retina specialist regularly.

I hope my experience can help someone else.





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Wet Macular Degeneration at 51 Years Old

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Nov 01, 2011
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Congratulations on your success
by: Susan

Dear Vicki

I am also 51 and have wet macular degeneration in the left eye and dry in the right. My doctor switch from Avastin to Lucentis to get better result to improve my eyesight. Results with both drugs were mixed. I never had full vision return. There is a lot of cloudiness in the one eye. I am hoping the right eye will stay true.

A whole year without injections sounds very encouraging! I have just gone about 75 days without needing one: such a releif from they typical 30 to 40 day interval. Good luck to you It is wonderful to hear a success story.

Sometimes I worry about the next 30 years and how much sight I will have left and for how long, but I have learned to take one day at a time and enjoy the beauty of sight each day!

May you be blessed with continued success.

Susan

Oct 30, 2011
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Thanks for your story
by: Vickie in Michigan

I also am a fit, healthy person who was surprised by my diagnosis with dry macular degeneration a couple years ago, in my mid 50s.

I guess I've been in a certain amount of denial about this thing ever progressing quickly. Thanks for the heads-up. All the the stories on this site are convincing me to me more diligent.

It's great that your eyes have stabilized.


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