Wet Macular Degeneration.: A Big Wake Up Call

by Robbie Schaecken
(SYDNEY NSW Australia)

"I'm just trying to stop you from going blind" said my doctor as I baulked yet again at telling him just how out of control my Blood Sugars had become, as he organised a blood test.

I had been a Type 2 diabetic on insulin for 10 years then, and truly lost the plot with the routine I needed to follow, in order to stave off the complications that were inevitable, for as long as I possibly could.

That was 15 years ago now. So that makes it 25 years all up. I went to see the doctor with a small blank spot in one eye, and after the gamut of eye tests that they put you through, I was told that I had spots that needed zapping with a laser and that I would need some Avastin injections for Wet Macular Degeneration.

I was shell-shocked. How could this be happening to me? I had the laser first – not too bad. Then, the days clicked over to my first eye injection. Oh Man, I wanted to be anywhere but sitting there waiting to have an eye needle. I felt sick in the stomach; I wanted to throw up, run away. My heart was beating so fast and hard I could hear it in my head, and see it moving my chest.

Lots of anaesthetic drops later, and without even seeing the needle “a bit of pressure “ was what the doctor said and some “bubbles in the eye” IT was done. I felt like flying. All over? “Yes “ he said, “that’s it”. What a relief, now lets see if I can see well. “ This will take a while” he said “and a few more injections” I fell over at the thought of more injections and walked dejected from his clinic after a detailed explanation With another appointment in hand.



After a couple of days, I had a good talk to my self and decided that if that’s what it takes to save my sight, well that’s what I’ll do. So here I am on my 11th injection over a couple of years with a bit of ME time off as I was tired of the routine. The doctor is working very hard to save enough of my sight so as I can keep my drivers license.

I have a sense of humour about life now that I never recognized before. Maybe because I’m 66 years old, and my best friend and I have had many a good old belly laugh about my poor eyesight. She, having saved me a few times from falling down a gutter or two, saying " next time mix more water with it" as we head off LOL.

We were driving along a well known road she was the driver, as I wasn’t seeing well that day. I mentioned that I couldn’t see the sign hanging from the over hanging traffic light post, I said “ you know mate my eyes must be getting really bad because I cant see any of the writing on that sign” “oh” she said as we got closer “that’s because there’s nothing on it, it’s facing the other way” . We've dined out on that one.

Macular degeneration is no fun. Thankfully there are web sites like this one and so many great products, organizations, and people available to help us.

When I do lose my license and can’t drive anymore, and my eyesight is very poor. I’m not worried how I’ll cope.
I am concerned how the people I interact with will deal with my warped sense of humour about it.

Keep smiling people ( It makes the world wonder what you’ve been up to)

Ms. Robbie Schaecken

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Wet Macular Degeneration.: A Big Wake Up Call

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Oct 27, 2011
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Cellophane Maculopathy
by: mags

I just wish I could be like you. I have dry AMD and hVE been told I need Cellophane Maculopathy. Has anyone else had this treatment, as I am really scared that it doesn't work.

I have dry AMD in my right eye, had it for roughly 7-8 years. Although I can't read with this eye, my vision with the left one compensates for it. My doctor has said that I am starting with dry AMD in the left eye now. So anyone, I would appreciate any info.
Nice to meet you all.

REPLY

Hello Reader,

Cellophane maculopathy is the name of a retinal disorder. It refers to an eye condition when a membrane grows on the surface of the retina. Call your doctor to get clarification on the name of your retinal problem and the treatment recommendations.

Kind Regards,

Leslie Degner, RN, BSN

Oct 23, 2011
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Robbie
by: Roy & Marj

We have known Robbie for a number of years, we communicate by email most days. She is a very loving and loyal lady, and a friend for life.

Once she makes her mind up to do something it is done 110%. She will handle anything which comes her way, even though she may not like it, and macular degeneration will be no different.

As a fellow diabetic, I know how easy it is to stray from the strict rules you must follow to stay healthy. Look at the things which can go wrong if you don't stay on the path.
Best wishes Robbie and keep smiling.

Oct 22, 2011
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Your Wake Up Call
by: Anonymous

I definitely like your sense of humor. I've been teasing and saying I guess I'll have to get piano music printed in braille to play the piano at church.

Someone said just memorize the songs while I can see. Memorize the songs? Are you kidding, if the scheduled songs were printed on the bulletin I would forget what I practiced on Wednesday to play on Sunday :O)

I'm 65 and doing good to remember my name much less how to play song on the piano.

We have to laugh at this because if we don't we will get so depressed we wouldn't make it. I'm determined this won't get me.

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