Wet and Dry Macular Degeneration: My Wife's Experience with Both

by Dr. Bob
(Wales, UK)

My name is Dr. Tranter. My wife has wet macular degeneration in her left eye and dry macular degeneration in the other eye.


She is having regular, monthly, treatment with Lucentis injections and OCT scans as required.

The injections seem to be 'halting' the progress of the Wet AMD and Ocuvite Preservision vitamin and mineral supplement, she hopes, is working for the Dry AMD.

What is scary for her, and what has not been commented on by contributors to your Site, is the very intrusive nature of the injection procedure. We have all heard the saying having 'pins stuck in your eyes', but this is a truism in the treatment of wet AMD.

How do patients cope with this monthly 'onslaught'? My wife is petrified at the thought of having yet another monthly injection (she has had six in her first year). Photo- dynamic therapy is less intrusive but has proved to be less effective than Lucentis, in most cases. Surely more research must now be undertaken which could result in treatments for AMD which can be more easily tolerated by patients!! I look forward to such advancements, on behalf of my wife and all AMD sufferers. Thank you for your Site it offers very welcome, informative, support for people with macular degeneration.

Dr Bob Tranter
Wales, UK

Comments for Wet and Dry Macular Degeneration: My Wife's Experience with Both

Average Rating starstarstarstarstar

Click here to add your own comments

Jun 27, 2017
Rating
starstarstarstarstar
News
by: Anonymous

Both the Avastin and Eyelea injections are not given to improve eyesight but to preserve it. The injections if done properly from a retina specialist shouldn't hurt. The after injection pain is like having a grain of sand under your eyelid, annoying. Eyelea just came out and said that the pre-filled syringes have been causing floaters. They also said that most likely they will go away within a few days.
I have injections done in both eyes every 6 weeks. 33 years of Type 1 diabetes has taken it's tole on my eyes. The injections have slowed the progress of my macular edema and if I can save my eyesight for another 30 years, happy days.

Jun 09, 2017
Rating
starstarstarstarstar
Silicone floaters from shots for wet AMD
by: Joan A

I too recently had a shot of Avastin for wet AMD in my left eye which has left me with silicone droplets - floaters - except they don't float - in my eye from the silicone coating the needle. They are right in my field of vision and particularly disturbing when I am in sunlight. I certainly am apprehensive about having another injection. I am wondering if the silicone from another injection will adhere to the drops already in my eye. My doctor didn't give any opinion re: whether they would ever go away.

May 24, 2017
Rating
starstarstarstarstar
My wife's eyelea treatment
by: David WilsonAnonymous

My wife is currently undergoing 6 weekly injections of Eyelea. Previously she was given Lucentis and recently changed to Eyelea which is a stronger dose than Lucentis. After her injection she gets unbearable pain which lasts for almost 2 days. She takes strong pain killers, uses a cold compress to reduce the swelling. Once she starts to get back to normal she has sinus problems, pain in the nasal area. Through the night she gets stabbing pains in the eye and floaters. She feels her sight is getting worse. She has a rare complaint which the doctors have not treated before. It is in the form of two different MD's. They suggested the injections to slow the progress of deterioration, not to improve it. My wife is not a wimp far from it, but I feel so helpless when I see the distress it causes. The clinic where she has the treatment are brilliant and are doing all they can to save her sight in her left eye. Just wondering if anyone else is going through similar experiences and if someone could offer any further advice.

May 02, 2017
Rating
starstarstarstarstar
Discouraged
by: Anonymous

It has been over 3 months since I had the floating disk, like an olive slice, after Avastin injection.
The doctor has since switched to Lucentis.
I am told that my brain will eventually adjust to this. It is compared to the rim of your eyeglasses, your nose.... But they don't move with every eye movement.
I have researched some of this. The floater I see is the silicone oil from the needle. But this usually dissipates.
For some reason, this one is not.
It appears that might be due to too much silicone used, freezing/thawing, shock during transport.
There are also needles which don't need the lubricant.. But compounding pharmacies don't use them.
I am still waiting to hear from others with the same experience.

Feb 12, 2017
Rating
starstarstarstarstar
Floaters
by: Me

I haven't seen anything in the comments about my problem. I have been getting Avastin injections for about 3 years. The procedure is now familiar, and of course never comfortable. I have had floaters afterwards, which went away after a few days.
This time, there is a disk which looks like a washer, which has been there for over 2 weeks.

When I called, I was told it would eventually go away.
It is beyond annoying, makes me off balance and nauseous.
Has anyone else experienced this?

Jun 24, 2016
Rating
starstarstarstarstar
Still Reading
by: Anonymous

I am 69 and I have wet macular in both eyes. Both were injected with Lucentis for one year and now with Eyelea. The right eye six weekly and the left is just holding with monthly injections. I am used to it now, and do not give it a thought until just before injections. I hope my eyes hold up util I finish my book, now in its seventh year.

Jun 15, 2016
Rating
starstarstarstarstar
Simple Things for Injections (I Wish I Had Known Earlier)
by: Anonymous

I developed dry MD at age 52 and now have (at age 67) both wet and dry in both eyes. I received injections in both eyes about every 5 weeks for the last 3 years. I have had all 3 drugs. Eyelea worked the best at reducing my PMDs, my bumps, but I had flu like symptoms with both injections for about a week. I've also had a cold laser treatment to reduce hemorrhaging (worked somewhat).

I have discomfort after every shot but I have learned to minimize it. My experience
_make sure they keep your eyes "wet" before the injection-especially if the doctor is delayed.This includes liquid tears before at home. I've had a couple of nasty abrasions that the effects were far worse than the injection.
-my doctor gave me some antibiotic cream that I can use after every shot if I need it.
-if you use eye drops more than four times a day, use the sterile ones
-wear sunglasses....a lot
-since I have a problem with hemorrhaging also, I really try to watch straining and blood thinning medications
-if you feel uncomfortable, call and ask.

Fortunately, I only have loss of sharpness in my right eye central vision and normally my eyes test at 20/20 to 20/30. Hope these
simple things help someone-I didn't do some of them and I didn't ask so I feel like I suffered through some things I didn't have to. Good luck to all.

Mar 10, 2016
Rating
starstarstarstarstar
Eye Infection/Retinal Vein Occulsion/Macular Oedema
by: Seema K

I have no vision in one eye, unrelated to my eye injections. However, when problems began in my good eye, getting injections in that one and only eye is always a horrifying experience - mentally. It is still scary till today, you don't get used to it.

I have had many eye injections. My first was when I was 43 years old, 7 years ago. I developed an eye infection, but no one could pinpoint what it exactly was. So one by one, every antibiotic was injected in the eye for a period of 6 weeks, and totalling 24 injections. It was a big relief when the last antibiotic available did the job, as there were no other options left after that.

Two years later, I had cataract surgery. Within a week I developed retinal vein occlusion. Also, macular oedema came into play as well. And so began the Avasrin injections and then Lucentis. I would be getting them very frequently. And a year later, it became monthly injections. I have now stopped counting.

Sometimes after an injection, it becomes pitch black for me. The first time I was terrified. But then I was told it was due to eye pressured and after a few Injures, all came back to normal. Main thing is I make sure what may or may not happen with the procedure and eye condition, so at least I am prepared.

It's true, in Australia, neither Lucentis nor Eylea were covered by the government unless one had macular degeneration. Even though the other conditions are also vision threatening.

Eylea has extended the time period between each of my injections, and that is the biggest milestone achieved to date. I am so grateful to my ALL of my ophthalmologists who have gone above and beyond their profession, to make the injection process as comfortable as they possibly can for me. And as for the researchers, well done and keep it going.

The eye is priceless.

Sep 22, 2015
Rating
starstarstarstarstar
Six years of injections since age 62.
by: Bill

I developed wet AMD in my left eye and didn't seek medical attention immediately. By the time I saw a retina specialist, an amsler chart looked like it was wadded up paper, lines had a blank spot in them, and there was a brown spot about the size of a quarter at arm's length.

After about 50 injections at this time, the brown spot has cleared, but the yellowish-green color of some school crossing signs and safety vests appears completely WHITE. There is some improvement, but not much.

I used to dread the injections, but now I accept it like a shot in the arm. Avastin came first, then Lucentis, and now Eylea. I now go every 8-10 weeks. Yes, the injections are unpleasant, but at least I still have my vision.

Jul 05, 2015
Rating
starstarstarstarstar
Lucentis injections
by: Helen

I'm mid-way through my 6th year of treatment with Lucentis injections in both eyes and have had amazing results with no noticeable loss of vision.

I've gradually graduated to treatments every 3 months. I highly recommend that everyone who sees wiggly lines - or has any other unusual abnormal vision - check IMMEDIATELY with an eye specialist to be diagnosed. Hesitating even briefly can be a BIG mistake. The shots are almost painless and, in my case, worked wonders because the disease was discovered early on.

Jun 15, 2015
Rating
starstarstarstarstar
Shots are scary - but blindnes is more scary
by: Joyce

I have been treated for wet macular degeneration for 3 years at Kaiser Permanente in Fontana, CA.

When I was diagnosed the symptoms came overnight. Straight lines wiggled, people and faces were distorted and my sense of balance was affected.

The shots took about 3 months to completely restore my vision to 20/20. While I do in one way dread the shots = I am very grateful to have this option.

Without the shots - which do not hurt me physically, other than some stinging afterward that is reieved by ibuprophen - I would not enjoy the things I love such as reading the Bible, quilting, playing with 4 adorable grandchildren and much moe.

I just last week developed macular degeneration in my right eye as well - so I now have double the shots. Do I wish there was a less intimidating treatment that worked - yes. But I am very grateful for my eyesight and an extension of my useful years. I want to add that my shot has never hurt - but I do get vey uptight the night before I have them.

Jun 13, 2015
Rating
starstarstarstarstar
i know the fear
by: Anonymous

i have wet amd in my left eye and take the injections so i get nervous every time i go but to give you some comfort the prep to the eye is worse than the injection

Mar 22, 2015
Rating
starstarstarstarstar
Retinal vein occlusion
by: AnonymousSusan

Hi all, I was diagnosed with a retinal vein occlusion 3 years ago. Sadly in Australia, unless you have macula degeneration, Lucentis and Eylea are $2000 per injection. Even though both conditions are indications for these drugs, our Government seems to put importance on one type of diagnosis and not the other. With ARMD it would cost me $30!

I've enjoyed a cocktail of injections over the years, 20 or more. 4 lots of laser and a cataract extraction caused by steroid injections. Avastin, Lucentis (on a trial) helped only for a short time. I have very persistent macula oedema which gives me the same visual disturbance as ARMD and seems to be getting progressively worse.

I have now tried my first Eylea injection (dr sample) and while it seemed to hurt for a couple of days more that the others, I also feel that it is drying out my retina a bit (only 4 days ago).
I found it important to check out 'Dr Google' not to ever double guess my specialist who I trust completely, but to try and understand my retina and my options.

When he suggests something, I am happily aware of some of the benefits and side effects and really feel like part of the decision making process. When I got the cataract, I wasn't disappointed since I knew that it was likely after the steroid shots which helped slow things down for a while. My choice.

I'm 59 and a nurse. Nothing makes the eye injections any easier! I hear that there might be eyedrops versions of these drugs on the horizon. I can't wait. I also take the rest of my general health very seriously so that I maintain vision in my other eye. Good luck to us all.... thanks to all the researchers working on our options.

Mar 10, 2015
Rating
starstarstarstarstar
Response to Lucentis, Avastin, Eylea Remarks
by: Jean in Boston

So sorry you have had no success with the injections. I'm wondering: 1) if it might be time for a second opinion with another retinal specialist; and 2) if I'm misreading--it sounds as if you are also getting injections in the dry eye.

I began Lucentis injections 7 years ago. One eye has stabilized at 20/30, but I lost central vision in the other one.

Good luck.

Mar 07, 2015
Rating
starstarstarstarstar
Lucentis, Avastin and Eylea
by: Anonymous

I have dry in the left eye and wet macular degeneration in the right. I have all three brands of the shot and am now on the 20th shot. None of them has stopped the bleeding or decreased the edema in my right eye.

I am 67 and the doctor says I am too young to have it this bad. My vision thank GOD is 20/30 in both eyes. I hope the shots are holding it where it is. I am having a problem dealing with the fact that I am going to lose my sight.

How do you get to the accepting point. I am fighting with all I have but it gets me down. Has anyone used Flovita yet, it should be coming out soon. I appreciate hearing of how everyone copes.

Nov 29, 2014
Rating
starstarstarstarstar
Lucentis Failed to Halt Wet AMD
by: Dr Bob Tranter

Some years ago I added comment about my wife's experience with Lucentis. She has Wet AMD in her left eye and Dry AMD in the other.

Unfortunately after three years of Lucentis injections she is left with only peripheral vision in her left eye - Lucentis has not worked for her after 28 injections.

She is not phased by the outcome and praises her Opthalmic Consultant for his caring attitude and professionalism. During the first year of injections there was some improvement in vision - some months upto an additional three lines on the Snellen Chart. But, sadly, her sight deteriorated in the second and third years and the injections were halted.

I note with interest, the worldwide research that is underway attempting to develop new approaches to treating both Dry and Wet AMD - in particular Stem Cell Research. I wish researchers every success in the hope that future AMD sufferers may benefit from 'better', more effective, and more easily tolerated, treatments for this debilitating retinal condition.

Nov 13, 2014
Rating
starstarstarstarstar
Eye Injections
by: Jean in Boston

I began monthly Lucentis eye injections about 7 years ago when my dry macular degeneration turned to wet. At first, the shots were only in one eye; then in both. Though there are some people who claim the injections are mere "pin pricks," that was not my experience. While not painful in any major way, they were definitely intrusive and scary.

Things changed over time, however. I learned how to handle the shots better. I told the retina specialist I was frightened and required (literal) handholding. I also refused to let anyone but my retinal specialist do the injections--not as easy as it sounds in a Harvard teaching hospital. The actual procedure has also changed. There is no longer any dilation, and the technicians are certain to wash the eye afterward to clear any stinging antiseptic. Still, it is no fun. That's for sure.

Fortunately, my left eye has stabilized so that I have had no injections for the past year. Unfortunately, I lost central vision in my right eye and have developed glaucoma in my "good" one. I still go every 3 months for retinal checks.

Because my husband was in the throes of life-threatening illness during the course of these events, I drove myself to and from the hospital for Lucentis injections. This may also have enabled me to place my own condition in perspective. Eye injections are terrible, but we don't die from them. I say neither of these things lightly.

Now I am alone. I can still drive and read. But all of us with AMD live on the edge. I think the key is to not allow the disease to define who we are--if we can.

Nov 13, 2014
Rating
starstarstarstarstar
Distortion with Minimal Macular Bleeding
by: Mary

I have the wet form in both eyes, the right for the past 3 years and the left just recently changed from dry to wet.

The injections are uncomfortable to say the least but anything to save my vision is worth the discomfort.

I am 59 with no risk factors and the AMD is very aggressive, the Retina specialist can only link the AMD to my years in the sun in AZ without sunglasses.

What is troubling me is that the distortion usually goes away after a day or two following the injection, that has been my experience with the right eye, but it has been 4 days and the distortion in the left eye is not clearing up, the retina specialist was also concerned that there was minimal fluid under the macula yet I am having distortion similar to when I had a significant bleed.

Has anyone else experienced the distortion remaining after the injection?

Nov 03, 2014
Rating
starstarstarstarstar
Eye injections intrusive
by: Anonymous

The injections for macular degeneration just about brought me to my knees. They are undoubtedly the most invasive of any medical procedure I have ever had in my life. I would (as we headed for breakfast after the shot) cry and even refuse to go into the restaurant.

I am no baby and have a Tom boy attitude, but I definitely resented getting the injection. My thought after the shot was this, "how would you like me to stick that needle in your eye."

Jun 19, 2014
Rating
starstarstarstarstar
My (Limited) Experience
by: Jen

I look to be the "baby" of the board at the tender age of 47! I was diagnosed with chorodial neovascularization (CNV) in my left eye in mid-May. The eyesight changes came on quite suddenly - almost overnight. I made an appointment with my eye doctor, who was concerned about a "freckle" on my retina. He made an appointment for me for that day with a retina specialist in the large city about an hour's drive from me. He wouldn't tell me what he suspected, which made the drive even worse! Once the retina specialist diagnosed my issue, he said that both he and my regular eye doctor were concerned I had a malignant tumor, which is why the first doctor wasn't too forthcoming with information. He didn't want to scare me unnecessarily.

I got my first injection that day. Other than "gravelly" eyes for the first 12 hours or so and a few floaters about two days after the injection, I had no side effects. I got my second shot today (about four weeks later), and this experience has been nothing like the first. For the first five seconds after the shot, I went completely blind in my left eye. Once the vision began to return, it was as if I was looking through a disco ball. It's been about four hours since the shot, and I have some headache pain (although that might be due to the pupil dilation) and I have a transparent black spot about the size of a U.S. dime in the lower center of my vision. I'm hoping it's just a giant floater and not some crazy side effect.

The only thing I really don't like about the shots is the expense. At the moment, I have no health insurance. (I live in the U.S.) The shots cost about $375 each. My first office visit, where I had a retinal flouroscopy done, came to a total of $1, 075.

Jan 17, 2014
Rating
starstarstarstarstar
Wet AMD
by: Jack

With no prior warning I came down with wet AMD in my right eye two years ago at age 83. I subsequently had monthly injections with avastin for three months which stopped the bleeding.

Fortunately, I experienced no pain whatsoever from the injections which I (somewhat seriously) attribute to the fact that my retina specialist was relatively young with a good steady hand.

I have mild ARMD in my left eye and although I have some minimal depth perception I still play pretty competitive tennis four or five times a week which I have been doing for the last thirty years.

Hopefully, I won't get wet AMD in my left eye...and, yes, I'm aware of the odds..but I'm not going to loose sleep worrying about it. Nevertheless, I am taking eye vitamins and eating a lot more greens.










Oct 14, 2013
Rating
starstarstarstar
Avastin, Lucentis & now Eyelea
by: Lena

I am 55, diagnosed at 51 with wet AMD. I've had 3 different meds. I just had my 2nd eyelea injection 3 days ago. My eye is still tender at the injection site. Usually, I have discomfort for 24 hours. This is disheartening. Some of those side effects will scare you to death!

I am hoping to switch back to Lucentis. I think I had good results with that one. I sure Praise God there is treatment but I Praise Him more when I don't need treatment. Hang in there everybody!!!!

Aug 22, 2013
Rating
starstarstarstarstar
Re: Painful Eye Injections.
by: kate in uk

I have just had my third Eylea injection over the last 3 consecutive months. Each injection was administered by different doctors. The first was a bit painful but the pain subsided within 24 hours and the gritty feeling over the next couple of days.

I thought all injections would be the same experience. Sadly the next injection affected some blood vessels and my eye was completely red. When I dabbed it with a tissue, there was blood on the tissue. I was so scared I phoned the hospital which had given me a number to phone if I had excessive pain or haemorrhage.

Because I had no pain I was told it would settle and it did. The last injection only last week was a completely different experience. No pain, no gritty feeling, just a little discomfort when blinking for a few hours.

I just wonder if the difference was that it was administered much faster than the other two times. However I am truly grateful to be able to have these injections if it will save my sight. I only know what I read on the internet about wet amd. I am so scared. Sometimes I think I wouldn't like to live without my sight. The clinic I attend is extremely busy and although they will answer my questions, I feel they cut me short and send me out to wait for the next stage of the injection process. Anyway I am so stressed when I go, I tend to forget what I need to ask. I am 69 and spend a lot of time on my hobby of machine embroidery. We all need our sight, no matter what we do, lets hope this treatment works for all of us affected.

REPLY

Thank you Kate for sharing your story with us. There are so many different solutions and treatments for those with macular degeneration along with lots of promising research. If or when your vision does change seek out a low vision specialist who can offer solutions that would allow you to continue your favorite hobby of machine embroidery.

Visual Aids for Macular Degeneration

Kind Regards,

Leslie

Jun 02, 2013
Rating
starstarstarstarstar
Coping
by: Anonymous

Can anyone tell me how to deal with the distortion you start to see after about 21 days or so after the injection??

I have early wet AMD in the right eye and I find it hard to sit in the car or even try and travel anywhere??

Would dark glasses help or how do you cope with that queezy feeling and blurriness...Any advice would help...I just feel so discouraged at times...

Jan 09, 2013
Rating
starstarstarstarstar
Wet Macular Degeneration
by: Anonymous

I 'm 73 and have recently been diagnosed with wet macular degeneration in my left eye. I have been very nearsighted since childhood.

What really surprised me is that I was diagnosed with it only 8 months after cataract operations & wondered if there could have been any connection.

I have had three Eylea injections one month apart in that eye & each one seems to be more painful. I have very dry eyes & I 'be been told that that makes the pain worse.

I just try to be brave because it goes pretty quickly. I find that an Advil when I get home helps and I put ice cubes and drops on it for a long time. This last injection had residual pain even the following day. So far it is halting it's progression but I see no improvement in my vision..

I 'm trying very hard to remain positive.

Dec 09, 2012
Rating
starstarstarstarstar
Hang in There!
by: Mary H.

I guess we're all so lucky, since even ten years ago there wouldn't have been much to help us.

I am on my 20th shot in the left eye, starting with Lucentis and now on Eylea. They're trying to spread the shots out so that they're not so often, since now I have scar tissue forming in the left eye. Eylea has worked in the right eye and it is now dry.

Hang in there, all! I did read somewhere there is research with stem cells for macular degeneration.

Fear before the shot-- my dr. gave me a nice little " I don't care" pill to take before my shot. It works!

Nov 28, 2012
Rating
starstarstarstarstar
My Wet & Dry Macular Degneration Continuing Journey
by: Mary Ann

I went to my local eye doctor to get new reading glasses in early 2011. He said I had developed a cloud on my implanted lens(had them both done in 2006) but it wasn't bad enough to be treated.

I insisted that he contact my doctor and make an appointment, he kept saying it wasn't that bad, I kept insisting. I finally got the appointment for the next week.

Once there, it took less than 5 minutes to be told it wasn't a cloud and what Macular Degeneation Specialist would I rather see? What is that-macular???-you pick the best for me.

I was in his office an hour later...and in tears an hour after that.

I have wet macular degeneration in my left eye and dry in my right. I paint, do stain glass combined with wood carving, every room in my house is a different, vibrant color...and had just been told I could lose my center vision-and would only see shades of gray.

I had asked for worse case because I figured luck would not be on my side. So I started reading, checking on family history(both sides had vision loss), checking on DNA(5.1 you are at high risk-I scored 5.9), taking AREDS, still doing shots and laser...and he has been great and honest.

I am losing vision. My nasty bleeders are very aggressive and resistant. My doctor is one of the best, but there is only so much he can do. I hate the shots too and find them very painful. I take Butalbital(its an old drug for migraines that I take for back pain)before the shots and it makes a world of difference.

Since I am only 60, I will outlive my vision, so, I will be leaving my very small town for the city-with its public transportation. My days of driving (night driving is already gone)are limited, but the future is not.

You make changes, you adapt and you continue to live your life-your way. My life will continue with help from family, friends and a wonderful man who wants to be my eyes. And when the colors leave my vision...they will never leave my mind.

Peace & Love

Nov 14, 2012
Rating
starstarstarstarstar
Avastin
by: Anonymous

I'm due to have Avastin injections and I'm petrified.

REPLY

I'm so sorry to hear how troubled you are about getting the Avastin injections. I don't know if it will help but here is a page where many others have shared their story and journey with AMD.

http://www.webrn-maculardegeneration.com/share-your-macular-degeneration-prognosis.html

Kind Regards,

Leslie

Nov 08, 2012
Rating
starstarstarstarstar
Reason for Avoiding Steroid Injections
by: Any mouse

I have wet ARMD in both eyes and received Lucentis injections in my right eye for two years. Then for some reason I was given a steroid injection and promptly got a shingles infection in that eye which quickly resulted in near total loss of vision in that eye.(about 95%)

If someone has had chicken pox in their past medical history I strongly recommend avoiding the steroid treatment.

In this process I changed doctors. The first Doctor gave the injection into the outer side of the eye which resulted in 24 to 36 hours of discomfort. The second doctor used the inner nose bridge side, which left me with very little residual pain.

Jun 27, 2012
Rating
starstarstarstarstar
No More Discomfort - Eye Injections for Wet AMD
by: Sally

For the past three years I have been receiving injections in my eye for wet ARMD. After these injections I would have burning and pain in my eyes and a horrible headache, and would spend the rest of the day and night in bed.

I have received Avastin, Lucentis and Eyelea and have been to three different retinal specialists with the results always being the same. Three months ago I switched to a different retinal specialist and he seems to give only numbing drops, he does not use the plastic ring to keep my eye open but uses his finger to open my eye at the time of injections. I don't know why the results are so different but I can now go home and and function normally.

May 02, 2012
Rating
starstarstarstarstar
Eylea Eye Injections
by: Marion

My Retinal M.D. has recently recommended that he wants to discontinue my Avastin shots into my left eye (which has wet macular degeneration) and switch to Eylea. He has been doing the Avastin shots on a monthly basis for about 1 1/2 years, and the leakage from the left retina has not stopped..

However, my vision has not deteriorated, and I'm worried about some of the side-effects that the internet is attributing to Eylea.

Any suggestions? Thank you, Marion

REPLY

Marion,

What side effects are you concerned about?

Dr. Randall Wong

REPLY

Dear Dr. Wong,

Yes, I'm worried about infection (which the internet reports is frequent), and of course more loss of vision. How long has Eylea been on the market, and what kind of results have been noted? Thanks for your concern and your help in coming to a decision.

REPLY

Dear Marion,

The infection seems to be from one isolated pharmacy and not a problem with the drug. Eylea has been on the market for less than one year, but it's mechanism is very, very similar to Lucentis and Avastin. It's the same concept.

Immediate results have been mixed largely due to the scare about infection, but now that it has been solved, we (doctors) are starting to use it more and more.

For now, it seems that it works just as well. We'll have a better idea in 1-2 years after it has been in use.

Randall V. Wong, M.D.

Retina Specialist Fairfax, Virginia





Apr 12, 2012
Rating
starstarstarstarstar
Eye Injection Pain
by: Anonymous

I am 52 and have had 20 injections in 29 months. I also have wet macular degeneration in the left eye and dry macular degeneration in the right.

The doctor uses betadine solution for a disinfectant: that along with dilated eyes seem to be most painful.

I have requested that they do not put the betadine in until the last moment and to also keep the light on while I am waiting so I don't have the change in lighting when the doctor comes in. I remind myself that this is necessary and it will help keep my eyesight.

As soon as I get home I rinse my eyes again, put in an ointment and then I try to sleep as much as possible.

I was a little concerned that keeping my eyes shut might prevent the eye from weeping and healing itself, but it does not seem to make a difference.

I also take about 800 mg of ibuprofen. I put cloths with ice cubes around my eye and repeat drops and ointment.

It's a horrible day but I know by the next day 90% of the pain will be gone and that's what gets me through.

I dread the day when I may have to get shots in both eyes. I have empathy for your wife.

Apr 05, 2012
Rating
starstarstarstarstar
More about Eye Injections
by: Jean in Boston

Those who share their experiences here make me feel less isolated. I am really grateful.

After 4+ years of injections, I think the worst were those at the beginning of the treatment, right on the heels of the diagnosis. I agree that the speculum is also unsettling.

On the plus side, my doctor no longer uses dilation before the shots, which has greatly aided recovery time. And I look forward to hearing more about Eylea. None of it is fun, but we are fortunate to have effective treatment.

And we are brave.

Jean Gould

Apr 04, 2012
Rating
starstarstarstarstar
My Wife's Experience with Both
by: Anita, London, UK

When I made my report I did omit the fact that I too have dry macular degeneration in my right eye as well as wet in my left. I too have been having Preservision to try and halt what is happening in the right eye.

I had 9 injections in 1 year and to be honest the only thing I found uncomfortable about them was the instrument they used to keep the eye open when injecting the medicine. That I do find uncomfortable, but I would put up with any discomfort if there is a chance of having my eyesight saved.

Wish your wife well, and tell her to keep going she will get there - and will be in a position to help others that might be worried about the trials of tribulations of eyeball injections .....

Apr 04, 2012
Rating
starstarstarstarstar
Fear of Eye Injections
by: Jean in Boston

Thank you for your submission. After four years of Lucentis injections, in my opinion, the only way to get through them is to keep remembering that they are enabling some of us to keep our vision. I get injections in both eyes, drive myself to the hospital (friends were more nervous than I), and home again. I usually ask one of the nurses or other staff to hold my hand.

In fact, I have trained myself not to think about the injections from one month to the next--and just try to get on with my life. I think that while we want to remain upbeat and positive, that effort can sometimes mean a denial of the very real terror many of us experience as we participate in this treatment.

Jean Gould

Apr 04, 2012
Rating
starstarstarstarstar
I absolutely agree
by: Aliza

Dear Dr.Tranter,

I absolutely agree with your wife's terrible feeling about getting Lucentis injections.
I also have Wet macular degeneration in my right eye and had five Lucentis injections in my right eye in seven months.

I have to go on getting Lucentis every month because otherwise it does not help. I am very depressed each time I get it but the next day I go on telling myself that this is the only solution for me to go on seeing.

I hope that soon some better solution will be found. Till then all Wet macular degeneration patients must be very strong and get as much support as they can from friends and family.

Apr 03, 2012
Rating
starstarstarstarstar
Eyelea and Lucentis
by: Bill Roudebush

I empathize with your wife. I have had about 40 injections over the past 3 1/2 years and the process has never become just "routine" for me.

My doctor has switched recently from Lucentis to Eyelea, a product recently approved in the U.S.

It is supposed to be effective for 8 weeks instead of 4 weeks. This is better but, like you, I hope for some less intrusive treatment. One of these days it will come. Good luck and stay strong.

Apr 03, 2012
Rating
starstarstarstarstar
Eye Injections
by: Ronnie

My Mom has also stated that the eye injections she received were painful (fortunately, her eye has dried and stayed that way so no more injections for now).

My Uncle also receives the injections and he stated that the pain level depends on the doctor giving the injection. Perhaps your wife's doctor is not using enough numbing solution, or perhaps he's not waiting long enough for the numbing to take effect. In any event, it's worth it to mention the pain to the doctor....he may try to use more numbing solution or wait a few minutes longer for it to take effect before injecting her. Good luck to you both.

Click here to add your own comments

Join in and write your own page! It's easy to do. How? Simply click here to return to Macular Degeneration Prognosis.

macular degeneration news

√ Prevention of Macular Degeneration?

√ Tips for Daily Living?

√ Food Suggestions for a Macular Degeneration Diet?

√ Ideas on Visual Aids to Maximize your Sight?

If you said "yes" to any of the above, sign up for the monthly Macular Degeneration News.