My experience with Occult CNV / Wet AMD

by Harold
(SC)

Three months ago I woke up with blurry vision in my right eye. It took 3 weeks to get an appt. with my eye doctor.

He then wanted me to put drops in my eyes for two weeks and then see a retina specialist. I had an appt with a retina specialist 5 weeks ago.

His diagnosis was wet macula degeneration and gave me an injection of Avastin.

He did not explain anything to me at all about macular degeneration or Avastin, treatments, time frames, etc....but said that my vision should improve in 7 days.

He said come back in one month for another injection, then three months after that and he would check my eye for any further blood vessel leakage.

My vision did not improve at all. I just had my second appt. and second injection of Avastin. The retina specialist did not respond to my comment about there being no improvement as he said.

I asked him about a corrective lens or other aid so that I could see better in the time being. He did not offer any suggestions.

Instead he said come back in another month (not three months as he said before) and that he promised that my vision would improve. This time he did not include any time frame with his comment. So, as of right now I am skeptical of this doctors comments and lack of comments or information.

He has not offered any information about wet macular deterioration or given me any information about prognosis, any time frame for future treatments; i.e.. how many, how long.

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My experience with Occult CNV / Wet AMD

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May 15, 2011
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Time to Change Doctors
by: Barry

The first rule of being treated by someone who only practices throughout their entire career: Be proactive. If you can afford it, get more than one opinion. Do the research.

I have classic wet AMD in both eyes. It's quite, or was quite, agressive. I don't take anything my doctor say for granted.

I research it myself. Sometimes there's much information. The treatments for classic/occult AMD are just too new.

I've been in a study program sponsored by Glaxosmithkline using pazopanib drops (Votrient is the trade name) and Lucentis injections. It seems to be helping, but it's still hard to quantify. One gets used to the condition.

The fluid levels are down according to the scans, anyway. Don't give up hope, either.

Despair is normal, but don't let it take over. New treatments are coming along all the time. This pazopanib, when it's available, may very well be the new wave of treatment for wet AMD.

Jan 22, 2011
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Consult Another Retina Specialist
by: Anonymous

I think it is extremely important that you schedule an appointment with another retina specialist.

Your family doctor should be able to give you the name of someone. Then check his credentials on the internet.

If your pleased with his background, make an appointment immediately. A doctor should answer all of your questions and explain fully your condition.

Good luck!

Elizabeth

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