Dry Macular Degeneration - Arizona
by Jim
(phoenix az. usa)
I was diagnosed with dry eye amd.
I can tell its progressively worse.
It's only been 6 months since I was diagnosed with it in my right eye.
I can tell how quickly its advancing using the amsler grid.
I don't want to be blind by the time I'm 60 I'm only 56.
REPLY
Hi Jim,
I'm sorry to hear how quickly you are experiencing vision changes.
Currently the closest clinical trial for dry AMD is in San Jose,California.
The stated purpose of this study is "to determine the safety and tolerability of multiple doses of RN6G in subjects with advanced dry, age-related macular degeneration including geographic atrophy."
You must be between 50-60 years old. To learn more about this study go to:
Dry Macular Degeneration Clinical Trials
Kind Regards,
Leslie Degner, RN, BSN
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Dry Macular Degeneration - Arizona
by Gregory
(Phoenix, Arizona)
I am a 57 year old male who was recently diagnosed with dry AMD in my left eye and would be interested in participating in any type of studies or treatments you may currently be doing now or in the future.
I am particularly interested in your Encapsulated Cell Technology as stated in the article.
There is a family history of AMD on my father's side but was very shocked to be diagnosed at this early of an age and worried about how fast it could progress and the possibility of this happening to my other eye.
This could be a disaster to my career as a design engineer and technical writer.
I would also be willing to travel for various trials.
Thank you
Reply
Greg, there is a Phase I clinical trial in Phoenix for dry age related macular degeneration.
A Phase I trial is looking at safety - not necessarily efficacy. It is a double-blind, placebo controlled study - which means some of the participants will receive the placebo and not the active drug. Here is the link to this study:
Safety And Tolerability Study Of RN6G In Patients With Dry, Age-Related Macular Degeneration
The Encapsulated Cell Technology (ECT) Implant for Patients With Atrophic Macular Degeneration Study is currently on-going, but not accepting any new participants. This means they have all the participants they need at this time for the study. It is going on right now which means as of yet nothing has been reported on this study.
If you want to see a list of all the dry macular degeneration studies that are seeking new participants click here:
Dry Macular Degeneration Clinical Trials
Meanwhile learn all you can about what you can do nutritionally to support your overall health and your eye health. Click here for information on:
Macular Degeneration Diet
Let me know if you have more questions.
Leslie Degner, RN, BSN
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Wet Macular Degeneration - Arizona, Kansas
by Jessica
(Overland Park, KS USA)
My mother lives in Arizona and I am in Kansas City. She's 68 and both eyes now have the wet form of MD and she is getting shots in both eyes. She is willing to travel if the study holds the possibility of improvement, not something such as whether or not shots or oral medications are more effective.
My grandmother and her sister also had MD. This is very scary for us, she has lost her ability to drive now and is extremely discouraged.
I am 38 and plan to go get a baseline exam after the new year. Any information you might provide is greatly appreciated.
REPLY
Hi Jessica,
Thanks for your e-mail. Your e-mail gives me an opportunity to do some educating on clinical trials.
Let me address your statement,
"She is willing to travel if the study holds the possibility of improvement, not something such as whether or not shots or oral medications are more effective."
Clinical trials have different phases. Most clinical trials are designated as phase I, II, III, or IV, based on the type of questions that study is seeking to answer.
Phase I clinical trials, researchers test a new drug or treatment in a small group of people (20-80) for the first time to evaluate its safety.
In Phase II clinical trials, the study drug or treatment is given to a larger group of people (100-300) to see if it is effective and to further evaluate its safety.
In Phase III clinical trials, the study drug or treatment is given to large groups of people (1,000-3,000) to confirm its effectiveness, monitor side effects and to compare it to commonly used drugs.
When I checked the clinical trials in Kansas and Arizona either they were a Phase I - meaning just testing safety - not effectiveness or your mother did not qualify because she has had previous injections.
You do have a significant family history, like my husband. It is important that you pay attention now to your diet - getting the right fats, carbs and protein. Foods high in antioxidants, such as lutein and kale are helpful. To find out more about this topic go to:
Diet, Vitamins, and Nutrition
Kind Regards,
Leslie Degner, RN, BSN
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Dry Macular Degeneration - Phoenix, Arizona
by James
(Phoenix, Arizona)
I was diagnosed about 6 months ago wih macular degeneration in right eye.
I have been noticing that eye is getting worse when it comes to being clear and when covering up my left eye just how wavy the lines have got in the amsler grid in just a few months.
I am 56 years old
REPLY
Hi James,
Currently the closest clinical trial for dry AMD is in San Jose,California.
The stated purpose of this study is "to determine the safety and tolerability of multiple doses of RN6G in subjects with advanced dry, age-related macular degeneration including geographic atrophy."
You must be between 50-60 years old. To learn more about this study go to:
Dry Macular Degeneration Clinical Trials
Kind Regards,
Leslie Degner, RN, BSN
Click here to post comments.
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