Low Vision Store in Ankara,Turkey
by Pinar
(Ankara, Turkey)
Hello, my mom has wet AMD. I live in Turkey, Ankara. I was wondering if you can let me know if there is a low vision store in Ankara.
Thank you
Pinar
Answer
Hello Pinar,
Here are some possibilities.
1. Ankara World Eye Centre in Ankara, Turkey
Serving the Anatolia region, Ankara World Eye Centre Hospital is the world's largest private eye hospital. They may offer low vision services and products.
2. Turkey's Low Vision Rehabilitation and Equal Education Programs
3. Public Health Low Vision Rehabilitation and Research Center, Faculty of Medicine, Ankara University, Ankara, Turkey
I could not find contact information on the web for these services, but perhaps this will help steer you in the right direction.
Leslie Degner, RN, BSN
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Low Vision Rehab - Edmonton, Canada and St. Pete, Russia
by Maria
(St.Petersburg (Russia) / Edmonton (AB Canada))
Dear Leslie!
I am 25 years old and was diagnosed with Stadgardt's desease 10 years ago. My vision dropped significantly and I think it has stabilised now on the certain level.
However, I have not been able to fully adapt to the vision loss and am experiencing a major psychological dificulties that I canot work out on my own anymore. I have heard there are low vision specialist working with people like me who can help find the suitable vision aids and refer to a special councelling therapy (not every psychologist would understand the special nature of issuies the visualy impaired have).
Could you please help me with where to find those specialists in Alberta (Canada) or St.Petersburg/Moscow (Russia)?
Thank you Leslie.
Reply
Hello Maria,
The Canadian National Institute for the Blind (CNIB) offers many services locally to those with vision problems like macular degeneration.
They have a webstore or you can ask for a free catalogue to order magnifying lamps or other visual aids. They also provide some great classes and support at their offices. For example they offer computer classes to teach you how to use magnifying software like Zoomtext. Here is the info on the Edmonton office.
Edmonton
12010 Jasper Avenue
Edmonton, Alberta
T5K 0P3
Phone: (780) 488-4871
TTY: (780) 482-2791
Fax: (780) 482-0017
Email: alberta@cnib.ca
Kind Regards,
Leslie Degner, RN, BSN
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Low Vision Store
by Amy
(Indianapolis, IN)
Is there a store in or near Indianapolis where we can try out these products? Thank you!
Answer
Amy, ideally, this is the best thing to do before making expensive low vision purchases. Depending on the store, usually you need to make an appointment so that someone is available to discuss your needs with them.
Before you go think carefully about what you want help with. What tasks do you especially find challenging - i.e. reading, writing bills, cooking, sewing, using your phone etc.
Different tasks require different visual aids. So be prepared to identify those areas before you go.
I found one low vision store in Indianapolis.
The Vision Aid Systems
Phone: 317-888-0323
E-mail: visionaidsystems@juno.com
The store address is:
916 E Main St
Suite 114
Greenwood, IN 46143
For more information on low vision aids click here:
Visual Aids for Macular Degeneration
Leslie Degner, RN, BSN
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Low Vision Store - London
by Hans
(London, UK)
Dear Ms Degner,
I am grateful for the information you are providing, but the links you are providing often are products which are quoted in U.S. $ - i.e. imports. Is there any shop in London in which one can see and try LED magnifyers?
Many Thanks.
REPLY
Hi Hans,
The Royal National Institute of Blind People (RNIB) offers many low vision services. They also have a store on their website of different magnifiers. Here is a link:
Macular Degeneration Aids in the U.K.
Kind Regards,
Leslie
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Low Vision Services
by Chris
(Mississippe)
I am not a quitter, but since I contracted this disease I had to give up a lot - successful trucking & construction company, among many other things like night driving & rainy day driving.
Is there anything out there to help these activities? I am 55 yrs. old & working on my GED now. I would like & value your opinion on a work field you think would be possible to be back productive in?
Thanks again.
REPLY
Hi Chris,
Thanks for your e-mail. There are a couple of low vision services you can contact who can assist you. They are:
1. The American Foundation for the Blind (AFB) provides a directory that lists visual rehabilitation programs nationwide. You may call them at 1-800-232-5463 or go to their website at www.afb.org.
2. LowVision.org provides some great resources and information on low vision. Visit them at
www.lowvision.org
Kind Regards,
Leslie Degner
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Low Vision Specialists - North Carolina
by Betty
(Wilmington NC 28412)
I had Lucentis injections and cataract surgery.
I am 80 years old and loosing my eye sight. It has saddened me more then anything in my life.
I am seeing a retina doctor now. My sight is getting real bad. The Dr. says I am legally blind now.
I can see if things are very light and very close.
I have had all kinds of glasses but they do not help.
My retina doctor from WILMINGTON NC says that stem cells are probably my only hope. Can you please help me.
REPLY
Hi Betty,
I am sorry to hear that you have lost so much of your vision. You said that none of the glasses you have used have helped you.
Have you seen a low vision specialist who can help you with low vision magnifiers and vision aids for macular degeneration? Click on this link to low vision rehab to find someone in your area:
Low Vision Rehab
You also said you have had Lucentis injections - which means you probably have wet macular degeneration. At this time there are 2 macular degeneration studies in North Carolina for macular degeneration - however, these two studies require that there is no previous treatment for your AMD - so the Lucentis injections would exclude you from these studies.
Take Care,
Leslie Degner, RN, BSN
Reply
Betty,
Here is a list from the LowVision.com website of low vision specialists in North Carolina.
Dr Nelson C Klaus Jr
3910 Shipyard Blvd
Wilmington, NC 28403-6151
Dr Gary Lee Mancil
630 Eastland Lane
Salisbury, NC 28146
Dr Van S Romine
Alamance Eye Center
404 North Holly Ave
Siler City, NC 27344
Dr Henry A Greene
3115 Academy Road
Durham, NC 27707-2652
Dr Edward L Paul Jr
13 Island Drive
Wrightsville, NC 28480
Dr Eric Ray Fogleman
2160 Midland Road
Southern Pines, NC 28387
Dr Stacy L J Levinson
5814 Summerston Place
Charlotte, NC 28277-2537
Dr Easton C Kelsey
5709 High Point Rd #103
Greensboro, NC 27407-7065
Dr Norva Elaine Osborne
8316 Medical Plaza Drive, Suite E
Charlotte, NC, 28262
(704) 547-1551
Dr Elana M Scheiner
113 Salem Towne Ct
Apex, NC 27502
Dr Lori W Couch
1233 Sunswept Circle
Raleigh, NC 27603
Meera V Dadhania
5210 Addington Ct
Charlotte, NC 28277-3234
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Lighthouse Stores
by Linda Domeier
(Danville, CA)
Are there any stores in the San Francisco or even Sacramento area where these products can be seen and evaluated "hands-on"?
Hi Linda,
Finding a low vision store where you can get expert advice on what is best for you and how to use the many visual aids for macular degeneration is the best way to learn. There is a Lighthouse Store in your area. Here is what I found for San Fransisco.
Lighthouse Store & Low Vision
214 Van Ness Ave,
San Francisco, California 94102
415-431-1481
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Low Vision Magnifiers - London
by Stephan
(London)
Dear Leslie,
Your recent email re page magnifiers was very interesting. Can you by any chance recommend a shop in central London were one could view and try these
products - not very easy to buy them online with out having seen it.
Many thanks.
REPLY
Thanks Stephan for your e-mail.
The Royal National Institute of Blind People (RNIB) is the UK's non-profit low vision service. It offers information, support and advice to people with sight loss.
In the United States, a low vision center like this one would also not only suggest but provide low vision magnifiers. Please contact them to see how they can help you or your loved one. Here is a link to their website:
Royal National Institute of Blind People
Kind Regards,
Leslie Degner, RN, BSN
P.S. Dear Readers,
Please do not let the words "blind people" prevent you from getting help from one of these centers. My father-in-law resisted services from his local agency - because he said, "He was not blind." Which is true - but they have many ways of assisting those with macular degeneration.
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Low Vision Magnifiers - New Zealand
by Stella
(New Zealand)
Hello Leslie,
First let me congratulate you on your newsletter.
I find it very helpful and informative. My reason for subscribing was to gain information that may assist my brother who has dry ARMD.
Leslie, I wonder if you could offer some advice or assistance with the purchase of low vision aids that may assist him with newspaper reading.
He has just been diagnosed with ARMD and has been unable to read his daily newspaper.
Looking at the report from his optometrist it says " with best corrected visual acuity what magnification is required to read newsprint at 25 cm? 4x with Bifocal on.
I searched some of the sites on low vision aids mentioned in your newsletters. as these aids do not appear to be available in New Zealand.
I even sent as message to one of these low vision centers over a week ago, I think its called The International Academy of Low Vision Specialists seeking assistance on purchase of reading glasses and magnifiers. Have not had a reply yet.
Would really appreciate any advice you can provide with purchasing the correct type of glasses and magnifiers as its a bit to expensive to travel from NZ to USA for a evaluation at one of the low vision aid Co's.
I am anxious to get things moving as my brother is getting slightly depressed.
He loved his newspaper and loved the independence of driving himself to garden centres, supermarkets etc. And now because he can only read the top line on the eye chart doctor said he would fail the eye test.
Strangely enough Leslie, I have been out with him in the car quite a few times over the past few weeks and his driving is really good. in and out of the city.
If it is of any help, the eye chart provided by one of the sites in your newsletter to determine vision, he can read the top line which says he requires 10x40D magnification.
Sincerely hope you can provide any helpful information in determining what magnification of glasses and magnifiers would suit his condition.
I should also mention he has a small cataract in the eye that has the ARMD. The other eye is a lazy eye he has not been able to see clearly out of it since his teen years.
Look forward to your reply
Regards
Stella
REPLY
Thank-you Stella for your e-mail and your willingness to help your brother who has dry AMD.
Depression is quite common for those with macular degeneration, especially if or when they give up activities that are very meaningful to them.
I was unable to find a low vision center in New Zealand when I performed an internet search. It would be best to have your brother talk to his eye care specialist and ask for a recommendation to see a low vision specialist.
The specialist can then make recommendations for low vision magnifiers to assist your brother in the tasks he enjoys - such as reading the daily newspaper.
The full page magnifier may or may not work for him.
A very helpful, but expensive magnifier with a large viewing area, would be a low vision CCTV.
Again, these recommendations would need to come from a low vision specialist. If that is not possible, then a person could buy a low vision magnifier on line, check out the return policy, and then have your brother try it.
Kind Regards,
Leslie Degner, RN, BSN
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Macular Degeneration Help - Low Vision Services in Arizona
by Bruce
(Arizona)
I have an elderly friend who has macular degeneration.
She can't drive or see her way to buy groceries without help.
Do you know anybody in the Tempe/Mesa, AZ area that might be able to help her.
Reply
Hi Bruce,
How kind of you to try to assist your friend with macular degeneration. She could definitely benefit from the services provided by low vision rehab. The closest low vision services to Tempe is:
Arizona Center for the Blind and Visually Impaired
3100 East Roosevelt Street
Phoenix, AZ 85008
Local Telephone: (602) 273-7411
To read how low vision services helped Dan Roberts, the author of The First Year: Age-Related Macular Degeneration: An Essential Guide for the Newly Diagnosed click here:
Low Vision Services
Kind Regards,
Leslie Degner,RN, BSN
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Macular Degeneration - Low Vision Services
by Jina
(United States)
Looking for resources, esp. low vision specialists, in New Mexico or the panhandle of Texas (Amarillo, Lubbock).
We could even travel as far as the Ft. Worth/Dallas Tx area. When I inquired of my mother's opthalmologist what resources were available, he seemed totally unaware of the rehab/OT/resource concept!
I'm glad we are nurses!
REPLY
Hi Jina,
There are a couple of low vision services you can contact who can assist you. They are:
1. The American Foundation for the Blind (AFB) provides a directory that lists visual rehabilitation programs nationwide. You may call them at 1-800-232-5463 or go to their website at www.afb.org.
2. LowVision.org provides some great resources and information on low vision services. Visit them at www.lowvision.org
Kind Regards,
Leslie Degner
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Jordy Glasses for macular degeneration
by George
(Australia)
My father has is 82 yo, and has aged related macular dgeneration, and very poor vision. We only just heard of, what apparently, is an 'old' product, called JORDY glasses. Unfortunately these are not available in Australia where we live, and no one seems to be able to provide us with any basic information.
I am in the process of trying to procure them from the US, if I can find a source that deals with international orders. What I am somewhat confused is, and I have seen references to is, what vision test results are required by the seller to ascertain if the glasses will be appropriate for dad?
I guess I can just go ahead and purchase them if I locate a seller, but at that price, I'd like to know they are appropriate, or perhaps dad's condition is so bad that they will be a waste of money and hope.
If you can provide any assistance, we would be most grateful,
Regards,
George
REPLY
Hi George,
You are right about a couple of things - the JORDY glasses are being phased out. So this may not be a good purchase at this time.
Low vision aids like these are very expensive, so it is best to get a recommendation from a low vision specialist who can evaluate your father and then provide some training.
Would you like me to see what low vision stores or rehab are available in Australia? If so let me know what the closest large city is to your father.
Kind Regards,
Leslie Degner, RN, BSN
REPLY
Here is the response I received from Enhanced Vision. They do have some JORDY glasses and have a contact for you in Australia.
Hi Leslie,
We have a limited quantity of Jordy units remaining for sale thru end of August on a first-come, first-serve basis.
Enhanced Vision will continue honor all warranty and technical support of Jordy for many years to come.
We do plan to have another head-worn device to show sometime next year but an exact timely is not quite available.
For reference, I've included the contact information for our Australian distributor below:
Mr. Shane Griffin
Visitech Magnifiers
Caves Beach, NSW - New South Wales 2281
Business Phone: 02 4971 5581
Home Phone: 61-402-825583 cell
sgriffin_visitech6@bigpond.com
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Low Vision Magnifier Store - Toronto, Canada
by Harold
(Toronto, Canada)
I live in Richmond Hill, Ontario (outside Toronto), where can I find the place that sells these items (low vision magnifiers). I'd like to see them before I buy. Thank you.
Reply
Hello Harold,
The Canadian National Institute for the Blind (CNIB) offers many services locally to those with vision problems like macular degeneration.
They have a webstore or you can ask for a free catalogue to order magnifying lamps or other visual aids. They also provide some great classes and support at their offices. For example they offer computer classes to teach you how to use magnifying software like Zoomtext. Here is the info on the Toronto office.
Toronto Region
1929 Bayview Ave.
Toronto, Ontario M4G 3E8
Tel: 416-486-2500
Toll-free Tel: 1-800-563-2642
Kind Regards,
Leslie Degner, RN, BSN
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