Life with Wet AMD

by Doug
(Pittsburgh)

I experienced the onset of this disease much earlier than most people. I had my first diagnosis at 43. It started with distorted and wavy vision.

I was lucky enough to get a doctor that used the newest technology. I began receiving monthly injections of Avastin. The results were incredible. I was able to recover the majority of my vision, but due to some scarring, I still had some loss.

After several treatments, he pronounced me cured and wished me well. Within 3 days I had another attack that had taken away almost all of the vision in my left eye. My vision was so poor that it was rated as "fingers at 2 feet" meaning that was all I was able to make out.

I resumed Avastin treatments and have improved to 20-60, but have now begun experiencing bleeding in my right eye as well.

I am now on Avastin therapy full time, and although the shots can be very unpleasant and painful, the results are incredible. I know that my prognosis for the long haul may not be that great, but with new research and continuing Avastin treatments, I believe I will be able to retain productive vision for years to come.

To anyone else in the same boat, hang in there. The shots will prolong your vision for many years to come.

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Life with Wet AMD

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Jan 06, 2011
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42 year old with Wet/Dry MD
by: Michelle

Last Spring I went for my regular eye exam. My doctor noticed dry MD in both eyes. She told me to watch for changes and sent me home with an Amsler grid. She told me that dry MD can remain dry for years, but to watch for changes in my vision.

A month or so later I saw my doctor at church and told her that I thought I saw some changes. She said I could come back in to the office for her to re-check me but I was probably fine.

I was photographing a wedding this summer and noticed that I had difficulty using my right eye to focus. It was an excessively hot and exhausting day so I just figured that was the issue.

I decided this fall after going back to teaching school and having more difficulty reading texts that I should have things checked out.

I went to the local ophthamologist on Tuesday, Dec 21st who sent me directly to a retinal specialist on Thursday, Dec 23. They did all of the testing and told me that I have wet MD in my right eye and dry MD in the left. They began shots of Avastin that day.

I realize that I do have a family history - grandmother and uncles - but no one in my family has been diagnosed by their 40s.

I am so thankful there are current treatments, but have some trepidation as to how long the vision loss can be held at bay with these treatments. Just trying to take things one step at a time!

Oct 29, 2010
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Don't be Afraid
by: Bobbie

Doug,

I agree completely with your comments. I was diagnosed with wet macular degeneration at age 50, (5 years ago) in my left eye.

I went through the treatment plan, (Lucentis) as prescribed and saw vast improvement.

This disease is so tricky that it can sneak up on you without your realizing it. My last treatment with Lucentis was in August 2008.

I have been back to the Doctor this month after noticing some distortion in my right eye, (October 2010) to find that because I had waited so long, (mostly due to fear), that the central vision in my left eye is gone and I have developed leaks in the right eye.

I beg anyone out there not to be afraid of the treatment as I was, and save your precious eyesight. If you have anxiety issues see your Medical Doctor for help for help before treatments, but do get the treatments.

Think of the things that you will miss; seeing your loved ones faces; being dependent on someone else for a lot of things that hurt your pride; losing your independence; losing your drivers license; the list can go on and on.

My best wishes to all wet AMD patients out there and I hope you find a Doctor as good as Dr. George Bertelucci with the California Eye Institute in Fresno, CA.

Bobbie

Jul 18, 2010
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Are you interested...
by: Janelle

Doug,...I am writing an article on eye problems and would like to use your comments, if I may.

If you are willing pls email me at yatescreative at gmail dot com.

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