Stargardts Disease
by Ryan
(Edgewater, Florida - U.S.)
19 years old now. Diagnosed at 16. Legally blind with Stargardt's Disease.
Answer
Jules Stein Institute in California is studying the use of stem cells for the treatment of Stargardt's disease. Click here and scroll to the bottom of the page:
Stargardt's Research
Leslie Degner, RN, BSN
Click here to read or post comments.
Juvenile Macular Degeneration - United States
by Kim
( tn)
I live in the us and have a daughter who is 10 with stargardts disease
Reply
Hello Kim,
There is some promising work being done by Advanced Cell Technology.
"Dr. Robert Lanza, chief scientific officer of Advanced Cell Technology, said the company hopes to start clinical trials this year in which blastomere-derived cells will be used to treat macular degeneration. The company is now responding to F.D.A. requests for further safety data.
As a private company, Advanced Cell itself is not bound by N.I.H. rules, but its clinical trial, to be conducted with the Foundation Fighting Blindness, will be supported by the Department of Defense, so the institutes’ approval of the cells is required, Dr. Lanza said.
Researchers at Advanced Cell pioneered the development of embryonic stem cells from blastomeres and have learned how to convert these cells into the special cells that form the basement of the retina. In animal tests, the blastomere-derived retinal cells grew well and allowed the light-detecting rod and cone cells to regenerate, improving the animals’ vision, Dr. Lanza said."
Stargardt's Disease
Leslie Degner, RN, BSN
Click here to read or post comments.
Stargardts Treatment and Research
by Bibi
(United Kingdom)
I am parent of 17 yr old son diagnosed in 2010 with stargardts macular dystrophy.
I want to know if there is any kind of treatment available anywhere in the world.
Thank you
Bibi
REPLY
Hello Bibi,
Thanks for your e-mail. I am sorry to hear about your son's new diagnosis. There is information on treatment and research for Stargardt's disease here:
Stargardt's Treatment and Research
Kind Regards,
Leslie Degner, RN, BSN
Click here to read or post comments.
Dry, Stargardts
by Bibi
(England)
My 17 yr old son has been diagnosed with Stargardts in the left eye.
He has dry macular dystrophy in the right eye.
He was diagnosed in 2010 when he was 16. He is still waiting for gene testing.
No one else in family has it or had it in past.
I have 3 other children 32,27 and 19.
REPLY
Hi Bibi,
Here is a page on several posts on Stargardt's Treatment and Research:
Stargardt's Treatment and Research
Kind Regards,
Leslie Degner, RN, BSN
Click here to post comments.
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