I Have Macular Degeneration Too Now - I'm Devastated

by Drew
(Kitchener, On, Canada)

I've recently been told that I have macular degeneration starting in my right eye. I'm 48 years old.

I have had 6 detached retina surgeries on both eyes when I was little, and just recently had cataracts develop in both eyes.

I had the cataract removed in my right eye, that's when it was discovered I had macular degeneration in that eye.

In August, I'm getting my left eye done to remove the cataract, but that's not even my fear.

I've been through alot with my eyes, detached retinas, then laser surgery, now cataracts, but nothing,nothing terrifies me more than macular degeneration. I am trying to find out how much time I have, how quickly it will progress.

My Uncle has the wet kind in both eyes, he is legally blind. He tries to be upbeat, he gets needles every month, but he is still legally blind. He wanted to die in the beginning, but he has adapted.

I'm trying to learn what I can from him now.



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I Have Macular Degeneration Too Now - I'm Devastated

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Jul 15, 2011
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starstarstarstarstar 		Macular Degneration and Cataracts
by: Anonymous

HELLO;

I also was diagnosed at age 48 with macular degeneration the dry kind. I am now 52 And there has been very little change.

I go every six months for exams, and just found out I have the start of cateracts in one eye; my good eye.

However I still have 80 percent vision without glasses. The cataract is so small it was not worth mentioning.

I am one of the lucky ones, I take lutein (vitamine) 20 milligrams every day and eat a lot of green veggies,that is what my doc told me to do to help fight MD.

I am a fighter I will not let it get me down. Life is too short to worry over things that will happen in the future, and as long as I can still see I will enjoy life to its fullest knowing someday I will be blind.

Lynn Germany
Jun 02, 2011
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starstarstarstar 		Is this drug approved in Canada?
by: Barry F

Since Canada and European countries tend to approve treatments prior to the U.S., try looking at this link:

http://clinicaltrials.gov/ct2/show/NCT01134055

I'm in this study and it has helped. In only three months, there was improvement. It's not a cure, but has brought the fluid levels down more than the Lucentis alone. I wish you all the best.

Barry
Phoenix, AZ
Jun 17, 2010
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starstarstarstarstar 		Hello
by: Barb

Hi, I just read your letter and I guess everyone fears the ravishes of Macular.

I was diagnosed at age 59 and my one eye slowly deteriorated but I still had my good eye - until just recently.

I am 68 now so it has taken almost 10 yrs. for my vision to finally become a major problem in my life. I have dry Macular Degeneration.

There are no pat answers because everyone's Macular advances at a different rate.

I'm at a point where it has just started to affect my driving ability during the day and that is a major problem since I still work and have a mortgage to pay.

I know there is research being done everyday but, so far, no cure. The only hope I've found was in surfing the internet and came across a site that might show promise.

In your browser, type in:
Macular Degeneration Robo4. Unfortunately, it will not be available for human trials for another five years - which will be too late for me.

I wish you well and I understand all your fears for I have them also. Let me know if you hear of any advances. I live outside of Philadelphia, PA (USA).

God be with you.

Barb

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