AMD diagnosed at the age of 36
I am currently a 44 year old female that was diagnosed around 8 years ago with AMD. My last appointment revealed that I had an "impressive amount of drusen" and it has gotten worse.
My grandmother had this disease very late in life. A specialist once told me I have a hereditary version of AMD however no-one in our family has the disease other than my grandmother. I also have a condition which is a result of low-estrogen. I can't help but wonder if there is a link.
I am getting to the depressed/frustrated state, but am hoping that this forum might help as it appears that there is a number of people under the age of 50 that have this condition.
I would eventually like to find someone that could do genetic testing or find a clinical trial study however it appears most of them are for 50+ years of age.
I only wish to be able to see my children marry and see my grandchildren. That is my one wish in life.
Diagnosed with Macular Degeneration at 35 years old!
In October of 2011 I was diagnosed with Macular Degeneration. I was also only 35 years old. This came to huge suprise for me because I have never had any kind of vision problems AT ALL!
I literally woke up one day with my vision blurred and straight lines bent in my right eye. After going to the doctor and hearing that I have it in both eyes, I was devastated and find it still hard to wrap my head around it.
It's only been three months since I was diagnosed and it has gradually worsened. It disturbs me that I have this disease at such a young age.
I was told that I was born with the gene mutation and someone in my family has it, yet we still have no clue who does. I am no longer able to drive at night and watching television has become a challenge just like using the computer has.
I'm just curious if this is very common for someone as young as I am to have this?
I am sorry to hear about your sudden vision loss and new diagnosis of macular degeneration. There are many different forms of macular degeneration -
because you are so young, it is not the typical age related macular degeneration but rather a type of macular dystrophy.
There are several different forms of macular dystrophy, (also called juvenile macular degeneration) that is the result of genetic mutations.
Stargardts is the most common form of juvenile macular degeneration. It is an autosomal recessive condition. What in the world does that mean? It means that these children or young adults have parents who each carry one copy of the mutated gene. However, the parents, typically do not show any signs and symptoms of the macular dystrophy.
Have you seen a retina specialist? He/she can tell you more about what type of macular dystrophy you have. Meanwhile for more info on Stargardts:
For help with your computer go to:
Computer Low Vision Aids
Let us know if there is anything more we can help you with.
Leslie Degner, RN, BSN
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