Dry Macular Degeneration - Philadelpha, PA

by Stephanie
(Philadelphia, PA USA)

I am 59 and have dry macular degeneration in both eyes and in the right eye one blind spot and moderate AMD.

The left eye is much better.

REPLY

Hi Stephanie,

The closest clinical trial for dry macular degeneration treatment is in New York.

Click here to learn more about this study.

Weekly Vaccination with Copaxone

Kind Regards,

Leslie Degner, RN, BSN

Dry Macular Degeneration - Philadelphia

by Elizabeth
(Philadelphia, PA USA)

I have dry macular degeneration. I am 67 years old. My mother had dry Macular Degeneration which never changed to the wet type. I live in Philadelphia, PA.

Any other information on current drugs being tested for
Dry Macular Degeneration would be appreciated.

Thank you very much for your assistance.

Sincerely,

Elizabeth

Answer

Hi Elizabeth,

It looks like the closest macular degeneration clinical trial for dry age related macular degeneration is this study in Baltimore:

A Study of the Safety, Tolerability, Pharmacokinetics, and Immunogenicity of Intravitreal Injections of FCFD4514S in Patients With Geographic Atrophy

To be eligible for this study you need to have:
"Geographic atrophy (GA) at least 0.75 disc areas in the absence of choroidal neovascularization (CNV)."

To learn more about this research study and to get contact information click here and scroll down to the last study:

Dry Macular Degeneration Clinical Trials

Leslie Degner, RN, BSN




Macular Degeneration Diet

Dry AMD - Philadelphia

by Stephanie
(Philadelphia, PA USA)

59, dry AMD, USA, PA

REPLY

Hi Stephanie,

I wish I had more to offer you for clinical trials for dry AMD. At this time (August 2010) there are very few - only 12 in the United States - some in Texas, Florida, California, Kentucky.

So the closest one to you is in New York. If you'd like to read about this study click here:

Weekly Vaccination With Copaxone as a Potential Therapy for Dry Age-Related Macular Degeneration

Kind Regards,

Leslie Degner, RN, BSN

Dry Macular Degeneration - Pennsylvania

by Rosetta
(Washington, PA)

I was just diagnosed with Macular Degeneration "DRY" and I am a 32 year old female.

The doctor said I will probaly see the effect in 10 years. I don't need glasses or contacts.

Is there any trials for my age group to try and prevent this?

REPLY

Hi Rosetta,

Most clinical trials for dry macular degeneration are for those 50 and older and have advanced dry macular degeneration. However, now is a good time to pay attention to your lifestyle and diet.

Go to Macular Degeneration Diet and Nutrition to learn more.

Kind Regards,

Leslie Degner, RN, BSN

Dry Macular Degeneration - Pennyslvania

by Barb
(Doylestown, PA 18901)

Hi,

I am 68 (female) and was diagnosed with AMD when I was 59. I was in a clinical trial study at the Scheie Eye Institute in Philadelphia, PA for 5 years. There were no positive results from that study.

I have just about no vision in my right eye which is the eye that was lasered for this study. My left eye is still OK but slowly deteriorating.

I also have early stage cataracts.

I don't know how much longer I will be able to drive and hold down a job but need to work to pay my mortgage.

I am divorced and the mother of 3 grown children and grandmother of one.

I found out about 5 yrs. ago that my 2nd cousin, on my mother's side, also had AMD.

My daughter had a difficult pregnancy and now has Amy - 2-1/2 yrs. old and I would like to SEE her grow and enjoy Happy years with her.

I pray every day that someone finds a cure for this disease.

REPLY

Hi Barb,

Currently there are not clinical trials for the treatment of dry macular degeneration in Pennsylvania.

I'm sorry to hear that vision in your left eye is starting to deteriorate.

Be sure to learn all what you can do with food and nutrition to support your general health and eye health:

Macular Degeneration Diet


Kind Regards,

Leslie Degner, RN, BSN

Dry Macular Degeneration - Philadelphia, PA

HI, I AM 53 YRS OLD AND I HAVE BEEN DIAGNOSED FOR ABOUT 15-16 YRS. I LIVE IN PHILADELPHIA, PA. I WOULD LIKE TO KNOW DO I QUALIFY FOR TRIAL??? PLZ REPLY ....

REPLY

Thanks for your question. If you were diagnosed 15-16 years ago at the age of 37 or so - this is not your typical age related macular degeneration.

Perhaps some form of macular dsytrophy? Have you seen a retina specialist?

Tell me a little more about your diagnosis and then I can do a clinical trial search for you.

Thanks.

Leslie Degner, RN, BSN

Dry Macular Degeneration - Pennsylvania

I'm 58, have dry macular degeneration, live in the United States in Philadelpia, Pennsylvania.

Reply

There still are very few studies for dry macular degeneration. The closest one to you is in Bethesda, Maryland. This one is for the more advanced form of AMD - geographic atrophy.
Click here if you'd like to read more:

Sirolimus to Treat Geographic Atrophy

Leslie Degner,RN, BSN

Dry Macular Degeneration - Pennsylvania

age 56
U.S.A
PA

Reply

There still are very few studies for dry macular degeneration. The closest one to you is in Bethesda, Maryland. This one is for the more advanced form of AMD - geographic atrophy.
Click here if you'd like to read more:

Sirolimus to Treat Geographic Atrophy

Leslie Degner,RN, BSN

Dry Macular Degeneration - Pennsylvania

I have been diagnosed with dry AMD with a blind spot in my right eye that they first thought was a piece of retina gel but have now said is part of the AMD.

My father and mother both had dry AMD. I'm 58, love to read and am a visual person, this diagnosis really scared me. Is there anything in the offing for dry AMD - any studies? I live in southeastern Pennsylvania.

Reply

Currently the closest two studies for dry AMD will be in Baltimore and Bethesda, Maryland.

1. Baltimore

Intravitreal Injections of FCFD4514S in Patients With Geographic Atrophy

2. Bethesda

Sirolimus to Treat Geographic Atrophy

Leslie Degner, RN,BSN

Dry and Wet Macular Degeneration - Pennsylvania

by Nancy
(Easton, Pa. USA)

Female aged 83 with wet macular degeneration in one eye and dry in the other. Previous treatment of injections to stop the wet. No treatment being given at the present. Living in Easton, Pennsylvania and interested in participating in a clinical trial.

Reply

Clinical trials can have different purposes. There is no clinical trial in the Philadelphia area looking at treatment - but there is an intersting trial on low vision rehab that includes several home visits to help you reach your vision potential and personal goals.

"The Low Vision Depression Prevention TriAL (VITAL), will test the efficacy of collaborative low vision rehabilitation (LVR) to prevent depressive disorders in Age-Related Macular Degeneration (AMD)"

If this interests you click here:

Low Vision Depression Prevention Trial

Leslie Degner, RN,BSN

Wet Macular Degeneration - Pennsylvania

by Sharon
(Pittsburgh, PA, USA)

Age 56
Currently no vision loss

Reply

Hi Sharon,

It would be unusual for you to have wet AMD with no vision loss.

There is one study for wet AMD in Pittsburgh.
Here is the link:

Ranibizumab Administered Monthly

Leslie Degner, RN, BSN