Distortion with Dry AMD - Scarring caused by my having had wet that reverted back to dry

by Michelle
(United Kingdom)

I have dry macular degeneration which has caused me problems with light sensitivity and glare. Three years ago I noticed a slight waviness to lines and went to the eye hospital. I had always been told to go to the hospital if I saw any changes in my vision and the Amsler grid.


The hospital told me that yes there was some distortion and I had done the right thing coming into the hospital and if I saw any changes to always go to the hospital. About four months ago I noticed that door and window frames looked distorted and went back to the hospital and was told again that yes I had distortion but as I had dry AMD there was nothing that could be done.

At my last appointment I was told that my condition had stabilized but I said I didn't think it had. The distortions have got worse, peoples' faces and legs look wonky, every surface looks wonky. I was told that I had scarring and I thought scarring and distortion were signs of wet AMD but after further tests I have been told that there is no treatment for dry AMD. I asked what was the cause of the scarring and was told I had probably had wet that had reverted back to dry and I will get used to the distortions. I am not getting used to it, I don't know how I get used to seeing everything looking wonky. I know that I should be grateful I still have my sight but I get very depressed about this horrible, horrible condition.

Comments for Distortion with Dry AMD - Scarring caused by my having had wet that reverted back to dry

Average Rating starstarstarstarstar

Click here to add your own comments

Nov 28, 2017
Rating
starstarstarstarstar
Seeing Wonky Stuff
by: Anonymous

You just have to laugh, honey. Sometimes I see raindrops that are not there. Love your wonky description. Better than syndrome.

I am having the same problems. The optomitrist (doctor of) told me I had scarring. My retinal specialist didn't. I noticed the blind spot way before it went wet. I read about it in a book Dan Roberts wrote. I had already experienced having a car pass me that I did not see and music notes that went missing.

I haven't been to the theatre or symphony in years because if they lower the lights after I come inside, I can't see anything for a number of minutes. Can't see where the stairs begin and end, either.

But I can still knit, with strong light. I'm not done yet. So. I'm knitting scarves for my family and some for charity. I turned 82 last September. When I wake up and know who I am, I think this is going to be a good day.

Click here to add your own comments

Join in and write your own page! It's easy to do. How? Simply click here to return to Macular Degeneration Prognosis.

macular degeneration news

√ Prevention of Macular Degeneration?

√ Tips for Daily Living?

√ Food Suggestions for a Macular Degeneration Diet?

√ Ideas on Visual Aids to Maximize your Sight?

If you said "yes" to any of the above, sign up for the monthly Macular Degeneration News.