An Invisible Disease
(Beacon Falls, Connecticut)
At the age of 37, I was diagnosed with wet macular degeneration in my right eye. After consulting with many doctors in Connecticut, I was told nothing could be done because surgery was too risky. After researching for 6 months, I found Dr. Lawrence Yannuzzi in New York. He immediately did laser surgery to stop the bleeding and prevent any further loss of vision. This procedure is no longer performed. It was the best option in 1984.
I taught 20 more years ,drove a car, was very independent and led a normal life with my "Invisible Disease".
In 2012 at age 65 my vision seemed really off one day. I called my retina specialist and she claimed it was scar tissue in my right eye. I consulted another retina specialist to find out, I had myopic wet macular degeneration in both eyes. I had been born with stretched retinas. ( News to me-was never told that before.)
Thank God I got another opinion. I received my first Lucentis shot that day. Shots were given for 3 consecutive months. I see my doctor every 4-6 weeks. After 8 months, I had one additional shot. I wear gas permeable contacts and I am doing fairly well after not being able to drive.
Most people have no idea that I have macular degeneration. that is why I call it the "Invisible Disease". My husband always said , "What will ever happen if I can't drive?"
Low and Behold, he had a stroke on Jan.2 which attacked his eyes only. It is a "Visual Deficit Stroke". Now we are facing many new challenges , both with "Invisible Diseases". Few people realize either of us has a problem. Life is definitely becoming more difficult.
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