27 yrs old with macular degeneration

by Viviana M
(Phoenix, AZ)

I am only 27 yrs old and the week of my daughters 2nd birthday I had a huge headache. I didn't think anything of it, I thought maybe it was stress from getting the party' planned. Then on the day of her birthday I couldn't take the pain anymore and I noticed when I cover my one eye the color red looked pink?!

I was very scared and made an eye appointment immediately. While at the eye appointment ( the next day!) I lost about 90% of my vision in my one eye. I was shaking as I was getting my exam. I couldn't read anything and I could see the concern in my doctors face. She then began to say what she thought it could be and called the retina specialist and said I would have to be seen today. I drove by myself crying the whole way. Scared & alone & very confused.

As soon as I got there I was seen immediately. After a several eye exam test they specialst told me I had Idiopathic Chorodial neovascularization and I would need to get a injection in my eye to stop the bleeding. She was concerned because she couldn't give a reason as to why a younger person would get this and also how the medicine from the injections will affect me later if I try to have more children.

I left crying and did not get the shot that day. I was freaked out and had no idea what was going on. I did get another opinion the next day and he agreed with the diagnosis so I started the injection process.

It will be a year on April that I have started treatment. I go every 4-6 weeks for an injection (it's still scary to me each time) I have shown improvement. But I live everyday with fear that the bleeding will come back and that I won't be able to see my daughter grow up. I would love some support? Is there anyone else who was diagnosed at such a young age?

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Mar 22, 2018
Young Diagnosis of Wet Macular Degeneration
by: Anonymous

I am 28 and diagnosed just 4 days ago with wet macular degeneration. I immediately had a shot of Avastin put in my eye. I am kind of scared because I haven't had a chance to have kids yet.

I've always wanted a family, but with the medication it may not be an option. I hate that my vision is affected and I don't like the idea of losing my independence.

Nov 01, 2017
31 and diagnosed
by: Jessica Hayes

Just found out today. So incredibly humbled.

Oct 30, 2016
by: James

I am 26. I was recently diagnosed with macular degeneration. The Doctor said it looks like Stargardt's. He told me to get a genetic test done to confirm the diagnosis.

Oct 21, 2014
Age Related Macular Deneration
by: Leanne87

I am also 27 years old and at 26 was told I have age related macular degeneration (wet) in my left eye and there is nothing that can be done to get my sight back as I have all scarring.

So have no central vision in my left eye and never will get it back. I also have 2 young kids and it is upsetting to know you might not get to see them grow up, see how they change in looks over the years, help with homework because you cannot see to help.

They have not told me if i will get it in my right eye but when looking on the internet its an increased risk to effect my right eye my good eye at some point.

It is very upsetting and stressing at any age but at such a young age with children dependent on you is so awful.

May 05, 2014
Praying for You
by: sheila

Just diagnosed at 42 freaked me out... was here looking for answers and came upon your post.

I am sooo sorry for you and hope you get the answers you are looking for. Good luck to you and God bless.

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